Whenever there is a big change in family or just life in general we often have to find a new normal. Humans are creatures of habit and something like a new baby throws all these habits and patterns out the window. Even when a new baby is completely "normal" and healthy life gets turned on its head. Having done this whole new baby thing before I was feeling fairly well prepared for this upheaval. I figured there would be some jealousy and acting out on the part of Mr. E, I knew I would be tired and emotional, I counted on the increase in laundry, and the mess in my house. But I didn't count on becoming a nurse of sorts.
I had planned for messy diapers, even blowouts, and spit up (I stocked up on oxy-clean products and laundry soap)-- but I didn't plan for something more on the opposite end of the spectrum. I didn't plan on a colostomy and having to learn to clean and change the bags for this. I wasn't prepared for the extra time it would take to empty the bag at diaper changings and then cleaning and replacing the bag every couple days. I wasn't prepared for the crying and distress it would cause Baby J as we hold him down and clean and change his ostomy.
But now we have a new normal. I feel I have mastered the diaper changes and emptying of the bag. I have figured out how to dress him without pulling on it too much. I have mastered the art of sponge bathing. And I can now say I can successfully clean and change a colostomy bag that will stay on for at least 48 hours with and without help. Mr. E has come to accept that Baby J is here to stay and has started to try to help by getting binkis, throwing away diapers, and trying to sooth Baby J when he cries. I have found a way to make sure that Mr. E gets one-on-one time that is all about him while Baby J sleeps. Mr. E is back on his old schedule (mostly) and Baby J is finding his own groove too. So I guess you could say that we have found a new normal, at least for now.
Living life after loss with faith, perseverance, family, and a lot of love. Learning to live with a rare disease. And homeschooling through it all. (Formerly prayers for the family)
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2 comments:
Yay for "normal!" We are so excited to come see all your little Mr's!
Congratulations on finding a *new* normal so quickly. Thank you for the Skype visit.
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